HANDOUTS AND REFERENCES

Food Issues for Independent Autistic Adults

Prepared for Autreat

June 24 through 27, 2002

Brantingham, New York

Listed first:  urls of handouts

Listed second:  actual handouts if written by me

Third Item: Full text of an internet handout that is news, and therefore may be unavailable on the net by June 24


http://www.vegez.com

http://isd.saginaw.k12,mi.us/~mobility/grocery.htm

http://www.hhmi.org/research/investigators/lisberger.html

http://www.his.com/~spectrum/history.html

http://www.dyxpraxia.com.au

http://www.howstuffworks.com/food.htm
(go to this website to get a PRINTABLE PDF VERSION)

http://www.cc.nih.gov/ccc/supplements/vitb12.html

http://www.vrg.org/nutrition/b12.htm


There will be discussion about the following documents and some others:

http://www.vegez.com/shopper/replacements.asp

http://www.vegez.com/beginning/food.asp

http://www.vegez.com/beginning/5tips.asp

http://www.vegez.com/shopper/beans.asp

http://www.vegez.com/shopper/fruits_veg.asp

http://www.vegez.com/shopper/nuts.asp

 

http://my.webmd.com/condition_center_content/ost/article/1671.53109?z=1829_00000_0000_f1_01

http://www.vrg.org/nutrition/protein.htm

http://www.veganoutreach.org/starterpack/recipes.html

http://www.nytimes.com/2002/04/23/health/nutrition/23BROD.html

http://www.newswise.com/articles/2002/4/GLUTEN.AAN.html

http://www.gflinks.com/~donwiss/gflinks/

http://www.panix.org/~donwiss

http://www.nytimes.com/2002/04/23/health/nutrition/23BROD.html

http://www.fred.net/ultrunr/glycemic.html

http://www.autism.org/mcginnis.html

http://www.boutell.com/vegetarian/pizza.html

http://www.mendosa.com/gi.htm

http://www.mendosa.com/gilists.htm


Pantry Items

Some of this is from Gale Goodner, of Oklahoma City, Oklahoma.  The web site has disappeared.

It's good to have about three days of worth of backup food in your pantry at all times.  This could cover weather emergencies, or even illness during which you can't get out to shop.  Don't forget food for the animals in your household.

The emergency items should be canned or dry (to last a relatively long time).  They should also be something you eat regularly, anyway, so they won't go to waste if you never have an emergency.

If possible, they should be easy to prepare, as you are likely to be incapacitated or without electricity or water whenever you need to use them.

Some items that have been suggested for this use include:

Canned meats, fruit, vegetables, soups, fish.

Dried fruit, pasta, milk, flour and sugar, salt, baking powder, coffee, tea, cocoa, rice, bouillon

Vegetable oil

Refrigerated items that can be used if the power continues are:

Eggs, milk, juice, butter, cheese, frozen meat, frozen bread, and frozen vegetables

Other items that are staples (always present, often used) in most people's kitchens in our culture are:

Canned tomatoes, tomato sauce

Chicken and beef broth

Canned or dry beans

Oatmeal

Baking soda and baking powder

Cornmeal

Cornstarch

Unsweetened and semi-sweet chocolate

Peanut butter

jellies and jams

Cooking sherry, white and red wines

Onions

Potatoes

Garlic - powdered, fresh or jar

Items I keep that many would not:

UHT Tofu  (Ultra High Temperature – lasts without refrigeration)

Bean threads (mung bean noodles)

Soy flour (in the freezer so it doesn't get rancid)

Soy sauce

Vinegar

Olive oil (because it's good for you)

Peanut oil (because it doesn't set off the smoke alarm)

Canned mushrooms, olives

Powdered ginger

Garbanzo bean flour (in the freezer so it doesn't get rancid)

Leftover pancakes or waffles (in the freezer)

Basic Cooking Kit

ten inch frying pan

twelve inch frying pan with lid

two quart sauce pan with lid

cutting board

firestarter (like matches)

big spoon for stirring, beating ingredients

spatula

measuring cups

measuring spoons

grater

dish soap

dish rag

scrubby thing

rubber gloves

towels

hot pads

plastic food storage containers

plates

bowls

flatware (knife, fork, spoon)

scissors

can opener

jar opener

mixing bowl(s)

salt shaker

eye dropper (for tiny amounts of something)

small paring knife

large sharp knife


Working on Motor Problems

Discussion and Practice

What function is causing problems?

Analysis of movement “made” or “not made.”

What parts of the movement can be isolated and practiced?

What else can be done to make this task easier?

     (for instance, always arranging equipment the same way before starting, or having a 3x5 card on hand to remind you of the steps involved and the things likely to be overlooked – a “Recipe for Action”)

THIS HANDOUT IS A NEWS ITEM -MIGHT HAVE DISAPPEARED FROM URL BY THE TIME YOU GET THERE

Sensitivity to Gluten May Result in Neurological Dysfunction

American Academy of Neurology (AAN)

23-Apr-02

http://www.newswise.com/articles/2002/4/GLUTEN.AAN.html

Library: MED

Keywords: AAN NEUROLOGY GLUTEN SENSITIVITY RESULT NEUROLOGICAL DYSFUNCTION

Description: You may have gluten sensitivity and not even know it. Loss of coordination (ataxia) may result from gluten sensitivity. This disease is known as gluten ataxia. The study found that some patients might never experience the gastrointestinal symptoms that prompt them to seek treatment for the disorder. (Neurology, 23-Apr-2002)

EMBARGOED FOR RELEASE UNTIL 4 PM ET, MONDAY, APRIL 22, 2002

For more information contact: Kathy Stone, 651-695-2763

For a copy of the study call Cheryl Alementi@ 651-695-2737, calementi@aan.com

Sensitivity To Gluten May Result in Neurological Dysfunction; Independent of Symptoms

ST. PAUL, MN -- You may have gluten sensitivity and not even know it, according to a study published in the April 23 issue of Neurology, the scientific journal of the American Academy of Neurology. Loss of coordination (ataxia) may result from gluten sensitivity. This disease is known as gluten ataxia. The study found that some patients might never experience the gastrointestinal symptoms that prompt them to seek treatment for the disorder.

"Gluten ataxia is a common neurological manifestation of gluten sensitivity," according to M. Hadjivassiliou, M.D., of the Royal Hallamshire Hospital, Sheffield, UK. "It remains unclear why some patients with gluten sensitivity present solely with neurological dysfunction when others present with gastrointentestinal symptoms (gluten sensitive enteropathy) or an itchy skin rash (dermatitis herpetiformis)."

Although the cerebellum (the part of the brain responsible for coordination) and in particular the Purkinje cells (output neurons of the cerebellum) appear to be most susceptible to damage in patients with gluten ataxia, other areas of the brain are not spared. "We were interested to determine the mechanism by which Purkinje cells are damaged in gluten ataxia," commented Hadjivassiliou. Study results show that patients with gluten ataxia have antibodies against Purkinje cells and also that antibodies against gluten (antigliadin antibodies) cross-react with Purkinje cells.

"These results strengthen our contention that eliminating these antibodies through strict adherence to a gluten-free diet may have important therapeutic implications for patients with gluten ataxia," concluded Hadjivassiliou.

The study was supported by the Friedreich's Ataxia Group, UK, and the Telethon Foundation, Italy.

The American Academy of Neurology, an association of 18,000 neurologists and neuroscience professionals, is dedicated to improving patient care through education and research.


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